Friday, September 3, 2010

It's over for now.

Audrey and I actually checked out of the hospital yesterday.
We have had her tested for over 30 possible causes of her failure to thrive including some scary ones. All but one test has come back negative and we are so grateful. The only other test we are waiting for is a food allergy one and that wouldn't be a big deal either way.
So the final diagnosis for Audrey is that she suffers from "Constitutional Growth Delay."
And just like it sounds, it's just a fancy word for the fact that she hasn't gained weight in 7 months and we have run out of any other possible causes we can test for. If this is indeed what Audrey suffers from, we still can believe she will grow into a normal healthy adult.
I think after spending the week in the hospital with professionals observing her caloric intake, we have been released to live our lives. On Wednesday she consumed 1100 calories! With this being the case, I think I can just feed her like a normal kid and stop keeping food logs and meeting with specialists every couple days.
Thanks to everyone for your prayers and support.

Tuesday, August 31, 2010

August 31

Phew! Today was even more difficult than I thought it would be. Not a fun day for Audrey but the hard part is over for now. The initial feedback from the MRI is that everything looked normal. I can not thank God enough. Of course this means we still don't know what is wrong with her. There are a few more tests that we should hear back about tomorrow. And Ty Ty starts school tomorrow. Big day.

Day Two in the Hospital

Yesterday, Audrey and I checked into the hospital. She thought it was a lot of fun here. Lots of toys and mommy by her side at all times. Then the night came. She slept very little. We spent much of the night walking back and forth down the two hallways in the pediatric unit. 
She has not been allowed to eat  or drink since midnight because she has an MRI scheduled today. This should be the worst day with most of the needles and tests. 
Thank God for Sofia who is watching the boys for me. 

Monday, August 23, 2010

Audrey's Health

Ok. So as some of you are aware, we have had some health concerns with Audrey this year.
She hasn't gained weight since she was 6 months old.
We have done over 2 dozen tests and seen many many specialists. Still, we have no answers as to why she is not able to gain weight. She has a special calorie-dense diet and I spend a good portion of my day chasing her around the house trying to stuff more food in her.
During the testing process, we did discover a hole in Audrey's heart (Atrial Septal Defect) and for some time we thought that was the cause of her "Failulre to thrive."
Since then, the hole has started to close up on it's own. Thank you God! So now we do not believe the heart defect is the source of her weight issue.
So I share all this because her team of secialists has decided to hospitalize her for a week of observation and a couple additional tests. This will take place from August 30 to September 3rd.
I thought I would share this with our friends and family now in detail because it has been hard to keep everyone up to date with the datails and frankly, sometimes I am too upset to talk about it a lot.
I think we have our people lined up to watch the boys while I am at the hospital and Ben is at work. I am truly overwhelmed with this all right now and would appreciate if any qustions could be directed to Ben. His email is beninstone@hotmail.com.
The summary of the sitution is that we don't know that anything is really wrong with Audrey right now. So it's not really a sad time for us or anything. Just a lot of worry and effort. She continues to show no other problems with health or developement and in the end we may find that she's just a little peanut.
Thanks for all your love and support.
Kelly - and Ben and the boys too.